wayfarer July 24, 2006 Author Share wayfarer Member July 24, 2006 Thank-You everyone. You have no idea, this is the comfy cozy place where I come to shelter from the storm. (Gamerscoalition in general) Your posts are incredibly uplifting. Now for some good news; My mother went to downtown Toronto this morning for her final radiation treatment. The mass inside her chest was approx. 7.5cm (3 1/2-4" I guess) It has been reduced almost half to 4cm (1 3/4"-2") Doctors said they are keeping they're fingers crossed, but are talking REMISSION!!! I have no doubt of God's magnificent works involved here. Myself, I'm doing ok, but I slacked off from the swimming the last couple of weeks, and this being a Monday, it's time to get back at it. Off to the pool! Link to comment Share on other sites More sharing options...
shadow July 24, 2006 Share shadow Member July 24, 2006 That's great news wayf! Keep the faith and God bless you and your family. Link to comment Share on other sites More sharing options...
MrDuke September 22, 2006 Share MrDuke Member September 22, 2006 Maybe I'm just playing at the wrong times or hitting the forums when you aren't around but... I haven't seen you around much Way. I hope things are going as well as can be. Saying a prayer for you right now, buddy! Link to comment Share on other sites More sharing options...
auggybendoggy September 24, 2006 Share auggybendoggy Member September 24, 2006 wow way, This is my first day reading this post and my heart goes out to you and your whole family. I'm saddened by hearing such hardships with people I know. my wife, myself and my daughter wish you the best and will keep you in our prayers. Auggy Link to comment Share on other sites More sharing options...
wayfarer October 14, 2006 Author Share wayfarer Member October 14, 2006 (edited) I have not been around very much lately, though I'm still in the forums everyday. CSS has taken a serious backseat to WoW, which I picked up with the sole intent of occupying my time during the day. It is without a doubt the crack of the video game world! On to more pressing matters; My mother has taken a turn for the worst. After all the chemotherapy and the radiation, after the the battles with C-dip (sp?) e-coli & all the other nasty's under the sun, the doctors have found that the tumor has started to grow, there is now a second spot, & it has also spread to the lymph nodes in the chest. The battle has now switched from recovery to palative care. There is nothing left for doctors to do but administer comfort. It will not be long now. I'm sorry I have not posted regarding this....It looked like we had really made a breakthrough for a little while & I thought everything was going to be ok. I am now praying for mercy. Thank-You everyone for your support. Edited October 14, 2006 by wayfarer Link to comment Share on other sites More sharing options...
becca48 October 15, 2006 Share becca48 Member October 15, 2006 I have not been around very much lately, though I'm still in the forumseveryday. CSS has taken a serious backseat to WoW, which I picked up with the sole intent of occupying my time during the day. It is without a doubt the crack of the video game world! On to more pressing matters; My mother has taken a turn for the worst. After all the chemotherapy and the radiation, after the the battles with C-dip (sp?) e-coli & all the other nasty's under the sun, the doctors have found that the tumor has started to grow, there is now a second spot, & it has also spread to the lymph nodes in the chest. The battle has now switched from recovery to palative care. There is nothing left for doctors to do but administer comfort. It will not be long now. I'm sorry I have not posted regarding this....It looked like we had really made a breakthrough for a little while & I thought everything was going to be ok. I am now praying for mercy. Thank-You everyone for your support. Sorry to hear about this. I will be praying for you and your family Link to comment Share on other sites More sharing options...
Ice_Berge_00 October 15, 2006 Share Ice_Berge_00 GC Alumni October 15, 2006 Way, your family is in my thoughts and prayers. Link to comment Share on other sites More sharing options...
wayfarer October 19, 2006 Author Share wayfarer Member October 19, 2006 after a very long night, my mother, Brenda Kostuik, passed away at 7:05AM est. this morning. I apologize to everyone for venting here, especially after semi leaving GC for WOW. I thought it best for all of us to give closure here. (though im not really gone just a break from CSS) THANK YOU everyone here, your thoughts and prayers have meant far more to me than I have given just due. God bless. Link to comment Share on other sites More sharing options...
stutters October 19, 2006 Share stutters GC Alumni October 19, 2006 i'm sorry for your loss, bud. let us know if there's anything we can do. drop by in teamspeak sometime and let's catch up. matt Link to comment Share on other sites More sharing options...
MrDuke October 19, 2006 Share MrDuke Member October 19, 2006 Way, I'm sorry for the hurt you are going through. I wish I could take it away. May God grant you clarity and peace during these times of mourning. You know she's in a good place and she's not hurting. Chat me up if you want to vent. Brian Link to comment Share on other sites More sharing options...
Preacher October 19, 2006 Share Preacher Member October 19, 2006 My prayers are with you and your family in your time of loss my friend. Cancer took my father a few years ago as well. Although I will say it was a relief to see that he was no longer in pain, it took me a year to truely get over his death. Don't get annoyed with everyone who says " If you need anything" or other cliche' statements that are made during this time. All the people are trying to say is that they care, they are sorry for the pain you are feeling and they wish that they could do more than make inadequate statements. Stand firm on your faith in the Lord, stand strong with your family members, lean on your friends and you'll be ok. It just will take some time. God bless you with His peace. Link to comment Share on other sites More sharing options...
wayfarer June 1, 2009 Author Share wayfarer Member June 1, 2009 I just reread this entire thread and cried my eyes out. It took me right back to the events as they transpired. I can't begin to say how much this communnity has helped me deal with the trials I have faced, and I continue to face. Every three months my sister's and I go to Sunnybrook hospital in Toronto for routine updates/checkups and (hopefully) any information regarding the disease we face, (Familial ALS) I wanted to post up for those that still actively read these forums about a tiny bit of information we came across at our last sunnybrook appointment. ALS itself, is quite rare, and the inherited version is rearer still. But the inherited version gives doctors something to track, and so our doctors have been telling us that there WILL be something for us, it's only a matter of time. Incredible amounts of reseach has been going on in the general area of genetics. When my sister's and I were leaving sunnybrook a couple weeks ago, everything seemed the usual, nothing new, we were going to meet for lunch. My younger sister and I commute together from Barrie, a small city about an hour away from Toronto. The hospital is very busy when we go down, and it's not uncommon for us to get seperated at times throughout the course of the appointment. After waiting for a little while in the car, my sister came out and we started out to meet with my other sister for lunch. Pam, the sister I was travelling with, has done extensive volenteer work for the ALS society, and sat on the board of directors until retiring late last year. While I was waiting in the car, she was chatting with one of the neurologist's that she used to sit with on the board of directors with the ALS society. When she got into the car, she calmly explained to me that the doctor had informed her of a doctor in the U.S that was successfully working on a procedure called RNA interference or RNAi. Apparently the precedure has successfully passed the mouse and monkey stages, and has now been given the green light for human testing. RNAi is no stranger to us, we have read clippings about it in muscular dystrophy newsletters for a few years, but when I heard that I turned to my sister and said, "well *&%^ that's fantastic news!" Timothy Miller is the neurologist working on this. We have contacted him and confirmed that he is indeed working on our exact genetic condition, and that he is hoping to get the human test phase(1) underway sometime this fall. We can not take part in test phase one, as they are looking for people that have been freshly diagnosed, and also U.S citezens. Phase(2) will occur when/if phase(1) is successful and will include my sister's and myself in some way shape or form. I can not express to anyone how much of a "light at the end of the tunnel" this is for me. I have just moved into a condominium bymyself, and the kind of thoughts running through my head have been dark indeed. Not suicidal, just dispair at how things were/are seemingly unfolding. I will try to post up information here as I get it, but as the first phase of the study will not get underway until the fall at the earliest, information will be at a premium for a little while at least. Link to comment Share on other sites More sharing options...
Wolfsblood July 2, 2009 Share Wolfsblood Member July 2, 2009 God bless you and you sister Wayfarer. It's encouraging indeed to hear that there are research developments underway that may lead to treatment options for you guys. We'll continue to keep you, and Dr. Mills in our prayers that his research will prove successful. Take care my friend and keep in touch. Wolfsblood. Link to comment Share on other sites More sharing options...
Bush January 2, 2010 Share Bush Member January 2, 2010 (edited) ugh!!! Edited January 2, 2010 by Bush Link to comment Share on other sites More sharing options...
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